Inpatient...

After a week break of being home, we were readmitted to finish the phase.  Her diaper rash cleared up, her counts were up, and her temperature was normal.  Back to our home on the hill.  Today has been 10 days since we got here.  The first five days were filled with chemo- 7 hours a day.  Evalette handled the chemo like a champ, with the help of our constant friend, Zofran.  Her appetite stayed the same and she surprised the doctors with how well she did.  We started calorie count on Monday because she hasn't gained weight.  She hasn't lost weight, but she isn't gaining so they were discussing a possible NG tube (feedings at night).  But they wanted to know how many calories she was getting a day.  I kept telling them that she seriously eats a ton and I was excited to show them how much she really eats.  It is crazy.  Tuesday, the dietician stopped by our room.  She was happy to report Evalette was getting 1200 calories a day, give or take.  Technically she only needs 750-800 a day.  She must just have a high metabolism like her daddy and mommy.  She was amazed.  We are trying to get as many calories in her as possible, through butter, Bright Beginning formula (adding it to oatmeal, potaoes, avocado), and anything else we can.  Seriously it is a full time job feeding Miss Evalette.  We started the neubogen shot on Sunday.  It helps boost her counts quicker.  Her counts bottomed out yesterday, so I am hopefully that we will see a stir by Saturday.  It would be nice to be home this weekend.  So we are just sitting around waiting for her counts to recover.  It is rather boring.  But boring is better than problems!   Not sure what the next phase looks like, as I haven't talked with a doctor for days.  Concentrating on taking one day at a time.